> Wife-husband team Sonia Vallabh and Eric Minikel are on a very personal mission to find a cure to prion diseases. When Sonia was diagnosed as a genetic carrier of a rare disease called Fatal Familial Insomnia (FFI), she and Eric quit their regular jobs and began studying molecular biology to learn as much as they could.
http://www.cureffi.org/ and http://www.prionalliance.org/blog/
> Wife-husband team Sonia Vallabh and Eric Minikel are on a very personal mission to find a cure to prion diseases. When Sonia was diagnosed as a genetic carrier of a rare disease called Fatal Familial Insomnia (FFI), she and Eric quit their regular jobs and began studying molecular biology to learn as much as they could.
Theirs is an incredible story so far. https://www.newyorker.com/books/page-turner/a-prion-love-sto...